Just because a child or teen affected by ALS isn’t saying anything doesn’t mean they’re okay. They may be bottling up their emotions, not wanting to burden the adults around them. See Jodi’s full interview at www.youralsguide.com/jodi-odonnell-ames-interview

Jodi O’Donnell-Ames is a parent, educator, former caregiver, ALS advocate, and public speaker. Jodi’s husband was diagnosed with ALS when their daughter was just two years old. Jodi is the founder of Hope Loves Company, the only nonprofit in the U.S. dedicated to providing educational and emotional support to children and young adults affected by ALS.

Your ALS Guide is the leading educational website for people living with ALS, caregivers, family, friends, and professionals. Find educational guides, expert videos, practical tips, helpful resources, and more at www.yourALSguide.com.