Another doctor visit | Hope we find some answers

Did she meet her IEP goals? Last week of preschool

Friday vlog

Vlog Dentist Greenhouse and a sleeping Freya

Birthday twins

I thought this would take years! Freya pushes her own wheelchair

Cornelia de Lange Syndrome Awareness bags

Field trip to the farm

Trying the outdoor pizza oven

First visit for our pediatric wheelchair

Freya helps assemble a pizza oven | Graduation day

The upside of Cornelia de Lange Syndrome

Tulips

Another mystery illness | How much does Freya weigh

Teeth problems and CdLS | Dentist with 4 kids

16 year anniversary what did we do without the kids?

Scary morning and a Doctor’s appointment

Carne asada and a girl that won’t keep her socks on

Hopefully this makes summer easier | polar products pediatric cooling vest

Limb difference awareness month | Swimming with the kids

Easter egg hunt

Freya would rather eat the dye | Baking soda and vinegar egg dyeing

Q&A with Freya’s Dad | Being a Dad to a disabled child

4 kids off to school | Morning routine

How did it go? Pediatric kidney ultrasound

Oral sensory seeking behavior explained

Sunshine and water tables

Freya favorite place on earth | CdLS clinic questions

Cornelia de Lange Syndrome clinic

Packing for my disabled child for a roadtrip