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Dealing with down days
301 views • 11 hours ago
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Support network with ALS
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Adaptive Shoe Haul
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Adaptive kitchen tools
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1:22
Accessibility surprises
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1:28
My pre ALS body
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365 day update
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Adaptive golf with ALS
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ALS Trial Navigator
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AMA day 3 for ALS Awareness month ❤️ ask anything in the comments! #als #ama #neurology
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AMA day 2 for ALS Awareness month ❤️ ask anything in the comments! #als #mystory #healthjourney
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Al’s disease #als #family #genealogy #ancestry #genetics #dna #greenscreen
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Snuck into therapy
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Part 1: the search for a caregiver
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Letting my dad do my makeup
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Embarrassing moment of the day
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EPISODE 4: Sabrina Sherr
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Home adaptations
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Live like you were dying.. at a moderate pace
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The next Project Runway challenge
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An update
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Relyvrio update
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april fools 2024
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EPISODE 1.5: Katey’s question for me
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EPISODE 3.5: Jess’s question for me
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Conversations with a dy!ng girl EPISODE 3: Jess Lubitz
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Booking train travel as a wheelchair user
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My MDA keynote experience
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Feb ‘24 ALS clinic results
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