Published On Apr 28, 2023
As part of our ongoing efforts to bring our mission to life through our advocacy work, we've asked some of our partners to share their thoughts about the power that real-world evidence offers for their communities.
Luciana Peixoto, a parent advisor of the Systemic JIA Foundation, shares her experience as a parent of a child diagnosed with SJIA. After many attempts at less invasive treatments, her daughter had to undergo an experimental bone marrow transplantation to combat this debilitating disease. Luciana's work with the Systemic JIA Foundation led her to partner with Komodo, and she's currently using Komodo's Prism solution to investigate and better understand the patient journey of these rare-disease pediatric patients.
Follow SJIA on Twitter: / sjiafoundation
Follow Luciana on LinkedIN: / luciana-papaleo-peixoto-b1a8a0118
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