Loneliness hurts my ME/CFS patients more than science shows - LIVE
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 Published On Streamed live on Jun 23, 2023

#chronicfatigue #myalgicencephalomyelitis #loneliness

Loneliness affects nearly all of us, but patients with ME/CFS teach us a valuable lesson about the effects of loneliness on our bodies. We'll talk about the biology and psychology of loneliness to demystify ME/CFS.

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Today we talk about the complex and often misunderstood world of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). We address the wide-ranging health complications such as cardiovascular, cognitive, immunological, and vascular issues that ME/CFS patients face, and how these problems are further compounded by isolation resulting from the disease's complex nature.

ME/CFS is a condition that transcends mere chronic fatigue. It is a neurological disorder associated with a range of complications that affect different parts of the body. In this video, we discuss how ME/CFS can cause heart problems, cognitive issues, immune instability, and vascular disruption. We break down these complications, providing in-depth explanations and insights into their nature, manifestation, and impact on patients' lives.

Interestingly, these health problems are not exclusive to ME/CFS. We explore the similar complications found in other conditions such as post-Epstein-Barr Virus (EBV) mononucleosis, Chronic Lyme Disease, "Long Covid," SICU syndrome, and post-West Nile Virus conditions. We present an in-depth comparison of these syndromes, illustrating their similarities with ME/CFS. By doing so, we aim to show how a better understanding of these connections could lead to improved diagnostic and treatment strategies.

Loneliness is a critical issue for patients grappling with chronic illnesses, especially those with ME/CFS. The lack of awareness, skepticism, and invisibility of symptoms often leads to social isolation. This lack of social support can lead to increased symptom severity and impede recovery. We delve into the psychology behind this isolation, providing a nuanced perspective on how loneliness interacts with the physical symptoms of the condition.

Unfortunately, this lack of understanding extends to the medical community as well. The elusiveness of ME/CFS can result in some healthcare professionals not providing the necessary support, leaving patients feeling dismissed and invalidated. We address this critical issue in the video, stressing the urgent need for increased education, understanding, and empathy within the healthcare sector.

Despite these challenges, many people living with ME/CFS demonstrate remarkable resilience and strength. Their ongoing struggle for recognition and support is testament to their fortitude. Through personal stories and testimonials, we highlight these individuals' courage, bringing a human element to the often clinical and impersonal narrative surrounding ME/CFS.

By providing a comprehensive overview of ME/CFS and its associated complications, this video seeks to contribute to a better understanding of the condition. Our hope is that viewers will come away more informed and empathetic, ready to support those living with ME/CFS and advocate for improved treatment options.

Join us as we dive into the world of ME/CFS, breaking down the walls of misunderstanding and indifference, one video at a time. Together, we can create a world where no one has to fight ME/CFS alone.

References:
https://academic.oup.com/bja/article/...
https://www.ncbi.nlm.nih.gov/pmc/arti...
Our Epidemic of Loneliness and Isolation - HHS.gov https://www.hhs.gov/sites/default/fil...
https://www.nature.com/articles/s4157...
https://ammes.org/anesthesia-recommen...


This video/speech/channel DOES NOT CONSTITUTE MEDICAL ADVICE. Patients with medical concerns should contact their physician. If your concern is an emergency, immediately call 911. This information is not a recommendation for ANY THERAPY. Some substances referenced in this content may be illegal, and this content is not a recommendation for, or endorsement of, their use in any way.

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