Published On Nov 1, 2025
Visit SMARCB1 Hope at https://smarcb1hope.org/
@HemeReview In-depth: • Only a few doctors know exactly what this ...
Thank you to Cassie and Jean-Baptiste Toulouse for sharing Ella's story
Thank you to Dr Pavlos Msaouel for connecting me with Cassie and Jean-Baptiste. Dr Shirley Su for providing insight to Ella's case from the surgeon's perspective. Dr Neal Akhave for providing insight to Ella's case from the medical oncologist's perspective from MD Anderson Cancer Center.
Interview Director of Photography: Pernelle Gaufillet-Ventura
secret channel: @BigEmus
Music by @Lifeformed
Medicine ► • Medicine
This video is not individual medical advice and are for general educational purposes only. I do not give medical advice over the internet.
References:
SMARCB1(INI1)-deficient Sinonasal Basaloid Carcinoma. https://pmc.ncbi.nlm.nih.gov/articles...
Clinical Implication of Diagnostic and Histopathologic Discrepancies in Sinonasal Malignancies. https://pubmed.ncbi.nlm.nih.gov/32946...
Impact of Clinical Factors and Treatments on SMARCB1 (INI-1)-Deficient Sinonasal Carcinoma. https://pubmed.ncbi.nlm.nih.gov/36856...
Long-term outcomes of modern multidisciplinary management of sinonasal cancers: The M. D. Anderson experience. https://pubmed.ncbi.nlm.nih.gov/37165...