Published On Aug 15, 2019
My ALS Journey Russell Cowger video 2
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What is ALS?
ALS, or amyotrophic lateral sclerosis, is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. A-myo-trophic comes from the Greek language. "A" means no. "Myo" refers to muscle, and "Trophic" means nourishment – "No muscle nourishment." When a muscle has no nourishment, it "atrophies" or wastes away. "Lateral" identifies the areas in a person's spinal cord where portions of the nerve cells that signal and control the muscles are located. As this area degenerates, it leads to scarring or hardening ("sclerosis") in the region.
My Symtoms:
Cramping
Stiffness
Fasciculations
Weakness
Balance is bad
Socks are harder to put on.
Lids / bottle tops feel tighter and I sometimes need help
Drop foot right leg
Right arm fatigue faster than left
Cramping everywhere
Legs, arms, while shaving, scratching back, sleeping , washing neck, have had cramp under chin, hands, arms,
Walking up/down stairs is hard
Definitely cannot run up or down stairs anymore.
Stumble a lot
Putting backpack on makes me loose balance
Trip a lot
When I get stressed, I get so tired it feels like I'm dreaming while awake
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